Researchers from the University of Western Australia and Telethon Kids Institute are seeking fathers of children (5 to 11 years) with a formal ADHD diagnosis to help them understand how parents make decisions around talking to others about their child’s ADHD.

As part of our ongoing commitment to supporting ADHD research, the Professional Advisory Body of ADHD WA has approved the following study invitation to be shared with the ADHD WA community. 


What is the project about?

Parents of children with ADHD often find that they need to make decisions about talking to other people (e.g., family members, teachers, other parents) about their child’s ADHD. Making these decisions can be challenging, and we know very little about how parents actually go about this decision-making process. We believe there is much ‘collective wisdom’ we can learn from the parent community. The aim of this study is to answer the question: “What are parents’ experiences of talking/not talking about their child’s ADHD with others?” We are hoping to use this information to provide resources to support parents’ decision-making in the future.

What does participation involve?

Participants will complete a brief set of questions online and take part in an interview. The online questions will begin after you read this information form and provide your consent to participate in the study. These questions will ensure you are eligible to participate in the study (e.g., your child’s age) and also include a few demographic questions about yourself and your child (e.g., gender) so that we can describe our study sample. Finally, you will be asked to provide a phone number or email so that we can contact you to arrange a time for the interview. This contact information will be stored separately from the rest of your responses. The online questions should take no more than 5 minutes to complete.

The interview will take about 1 hour, and can be either in-person or via Zoom, depending on your preference. The interview will be audio-recorded so that it can be used for research. During the interview you will be asked questions about your experience being a parent of a child with ADHD and talking to other people in your and your child’s life about their diagnosis, such as:

  • Have you shared your child’s ADHD diagnosis with other people in your/your child’s life? Who have you shared this with? Why did you share it?
  • Are there some people you haven’t shared it with? Why did you decide not to?
  • Have your experiences of telling people about your child’s ADHD influenced your future decisions about telling others about your child’s ADHD?

If you choose to do the interview in-person, it will be recorded using a digital audio recorder. If you choose to do the interview via Zoom, it will be automatically video and audio-recorded by the program. The video recording will be deleted immediately following the interview, as it is not required for the research. The audio recording of the interview will be transcribed for analysis. Once the recording has been transcribed, the audio recording will be deleted.

Contact Information

To find out more about the study, visit https://bit.ly/ParentStudyADHD or email irene.mateoarriero@research.uwa.edu.au